Cancer, Children, LifewithEm

Is Driving Scarier Than Cancer?

Today is a day I prayed for, dreamed about, visualized, and mentally willed into creation. It was at a time that today seemed so far away. It was more of a hope and a wish for a future that statistically had little chance of happening. It is the day Emily will get her driver’s license.

In a children’s oncology ward with my 3-year-old hooked up to tubes, IV’s, and broviacs, I would talk about the future. I would visualize the future I was praying for regardless of what the stats told me.

 I vividly remember telling 3-year-old Emily how cancer wasn’t going to be as scary as the day she got her license. I remember laughing and telling her how for “Mommy” that day was going to be waaay scarier! I wanted her to picture her future. To not give up fighting for her life because of the pain of the present.

It was at a time when I knew her will to live was paramount to her survival. 

In full transparency, that day seemed like more of an imaginative place so far in the future I couldn’t even feel it.  Most of the time I just prayed she would live until 7, the age a relapse was unlikely and I could finally resume breathing like a normal human again.

But 17?  Ten years beyond that? It was risky to ask for.

We are told in James 1:6 “But when you ask, you must believe and not doubt.”   The message translates that to, “Ask boldly, believing, without a second thought.”

It was bold to talk about the future as if it was a done deal. It was bold to stand in defiance of the facts.  It was bold to confidently paint a future for a child that she might never see.

I was scared, but I was bold. Bold is from an old English word that means “stout-hearted, brave, confident, strong.”  I believe we can be scared and brave. We can be scared and confident. We can be scared and strong.

Today I am scared and strong. Today I stood in the waiting room just after she passed her driver’s test and went in to get her license. A big sign on the door said parents and instructors had to wait outside. I did a double-take. “Wait, I can’t go in with her?” I had to hand her all of her 6-point identifications and send her off to a government agency without any windows to even see who she was talking to and just wait?!??!  As my mind struggled with this new independence I realized getting her license is more than an answered prayer, it’s a bold step into adulthood.  A world without me standing as her advocate by her side.  A world where she will need to stand boldly on her own.  I fully admit I have struggled with the idea that I might not get to be her college roommate and I might actually have to cross a state line to see my daughter. And that actually might not be every day or just whenever I want. 

How did I foreknow 14 years ago sitting in a hospital bed praying daily for my daughter’s survival that the day she got her license would be scarier?  Not just because she is driving and NJ drivers are insane, aggressive, and think 55 is really code for 95, but because it’s an inch (or giant leap!) into adulthood. At least in the hospital room, I was her voice. Now she gets to speak for herself.  In the hospital room, I made all the decisions. Now she gets to make decisions.   How, in the midst of uncontrollable cancer, did I feel more in control?

So today I am filled with gratefulness and sadness. A strange and confusing combination of emotions that have settled into the pit of my stomach.

Sadness that every day is one day closer to her living a life as a grown-up. Where she will have her own house, her own family, and she will “visit” me and not live with me.  My heart aches even as I write this.

And gratefulness that today is the day that is scarier than cancer. Today is the day we dreamed of, prayed for, and laughed about.

Today is a reminder of just how far we’ve come.

Today is the day my miracle kid got her license.

Children, diet, Uncategorized

Giggles, Diets and My “New” Medication

There are teenagers running all over my house. They are loud. A teenage girl giggle is apparently one of the loudest sounds on the planet breaking all sound barriers. It’s also more contagious than COIVD19. Once one shriek is heard expect others to follow.

I was trying to sleep last night. I kept getting woken up. I believe at once point I literally shouted downstairs, “I can hear your entire conversation, be quiet!” 

Emily yelled back, “Wait, you can hear what we’re saying??

 “YES I CAN!” I may have screamed back.

Ok, so I couldn’t really hear exactly what they were saying but I figured if she thought I could she would quiet down simply out of, “I don’t want my mom to hear us” since it clearly wasn’t out of, “I don’t’ want to keep my mom awake.

I am happy she is happy and that my house is filled with teenage giggles. I’m glad she has great friends who have great parents who have great values. I’m glad she wants them all over here to hang out and take over my house. Too soon it will be quiet and those giggles will be filling dorm rooms instead of her bedroom.

I also have to admit I am super cranky.  Recently, a lot super cranky.  (Emily will attest to this.) In case you haven’t heard I am on a diet. You can call it whatever you want, “Getting healthy,” “Creating healthy habits,” “Getting fit” or whatever other sad-attempt-to-put-a- positive-spin-on-it you can think of, but just remember the word is actually just DIE with a “T” attached.  I have lost over 10 pounds and a total of 6 inches in 6 weeks.  Today, I put on a pair of jeans I haven’t worn in a year. (Ok it is 2020, has anyone really worn jeans this year?)

This also means I am not self-soothing myself with Entenmann’s donuts and Oreos. I have had to come face to face with the fact that chocolate really is my self-medication and makes me feel better when I eat it. In the past I have joked that Oreos are my crack, however this is no longer a joking matter. I actually had to make an appointment with my doctor because my anxiety is through the roof.

I calmly explained that while I have suffered from anxiety in the past, it has always been caused by a specific reason.  (I mean being stalked by your ex and keeping a stage 4 kid with cancer alive feels like it should come with a free anxiety pass.) But now I am safe and my daughter is happy (hence the giggles at 2am) so why am I finding myself snapping and panicky? It’s bizarre and I can’t figure it out in my head. Things that don’t make sense in my head then … cause me more anxiety.  (Like how that works?) I have been told I am an overthinker and only recently learned not every talks to themselves in their heads.  I can’t even imagine going through life as one of these bizarre non-self-talking mutant-humans. (You can learn more about this strange phenomena HERE.)

Then, of course,  I tell myself to, “Get it together!”  I lovingly question myself with, “What the heck is wrong with you!!!” And finally blame myself with, “If you had a better routine, worked out more, meditated, or were more organized” you wouldn’t have this “problem.” All of which just seems to increase my anxiety.

My doctor thinks it’s my diet.  Now, instead of stopping at Wawa on my way home to literally soothe myself with the delicious smoothness of a perfectly crack-high inducing donut, I am snapping and hyperventilating.

So, it seems my choice is fat and happy or skinny and cranky?  She suggests I drink a glass of wine at night.  Yup, that is my prescription. She’s been my doctor for years. She says anything she gives me will have way worse side effects than a glass of wine. And, since I don’t have an addictive personality (maybe I haven’t been 100% upfront about my donut issues) she feels it’s the “safest” way to go.  If I start drinking a bottle a night that’s a different story. (I think about sophomore year health class and learning how all smokers start smoking just “one” cigarette.,.. but decide not to bring that up.)  I was married to an alcoholic so I am definitely leery although somewhat excited (?) about my new “medication.”

I have decided it’s more fun getting fat. I like margarita’s, donuts and anything covered in cheese. It’s less fun getting fit. I don’t enjoy working out, drinking water like it’s …well water, and measuring my cheese so I can log it in an app.  “Why God? Why did you make it that way?????”  I am angry and resentful of this “the way the world works” knowledge.

It’s Saturday night and I’m typing this in my office (yes it’s 24 hours later and there’s still squeals of giggles coming from the other room … only now with “new” gigglers added” ). I just picked up pizza, salad and poppers for the gigglers. I was upfront with them. I’ll feed you dinner I just won’t cook it….what do you want? (Don’t worry, I have long ago given up on that pre-child fantasy about being the Pinterest mom who has an adorable Halloween themed Saturday night dinner planned for the giggler and her friends…that mom probably drinks way more than a glass….or at least that’s what my jealous judgment thinking rationalizes.)

I cut a tiny slice in half and savored every bite.  Pre-DIEt I would have had 2 slices. My sad half slice will have to do if I want to keep wearing these jeans.

Then, that horrible voice which must truly be from Satan himself starts up:

Do you really want to wear these jeans Tara? I mean COVID cases are going up and there’s a more than 50% chance you’ll be in full lock down again soon and wearing yoga pants and no one will see you anyway because zoom is from the waste up afterall…

Then I remember these last six weeks and how gooooood it felt today to put on these jeans… and I sulk away with my pathetic half slice and a mason JUG full of water.

I already drank my glass of wine too so no luck there.

I hear it has been said, “Nothing tastes as good as skinny feels”…apparently that person never had an Entenmann’s donut. 

Here’s to being the skinniest anxiety ridden person you know. Cheers.  

PS Literally as I am trying to post this the gigglers have just intruded and taken over my office and are planning a fashion show in the pile of dresses I have set out for donation/consignment. I am equally grateful they want to hang out with me and confused on how such small humans can make so much noise.